Ten Ben’s Friends Members and Friends are traveling to Glacier National Park This August for five active days to prove rare Disease Can’t stop - us not on Land or…
Category: Uncategorized
2018 Ben’s Friends Community Network Update
The following new communities were started in 2018, many of which represent co-conditions that occur with Rare Diseases already supported by Ben's Friends Patient communities and may be of interest…
Payment Form for BAF + BF Partnership (Hidden)
Hi, Christine Buckley and Team, We set up this Paypal recurring payments form to make this easier for everyone. Just click the SUBSCRIBE button below and you'll be redirected to…
Ben’s Friends Newsletter November 2016
MESSAGE FROM BEN Hi, everyone, I hope this message finds you and your loved ones well. Ben’s Friends Patient Communities was founded in 2007; I had just…
Why Ben’s Friends Moved Its Patient Support Communities to Discourse from Ning
Ben’s Friends History When we started Ben’s Friends Patient Support Communities in 2007, our mission was to provide support for the millions of patients with rare diseases across the world.…
95% of Rare Diseases have No Drug or Therapy
Rare disease “affect more people than the biggest headline-grabbing diseases on the planet.” View this infographic produced by CrowdMed to see the stats: The Epidemic No One Is Talking About:…
Is the Price of Generic Drugs in the US Going Up?
A 1000% price hike in the cost of generic drugs? Can that be true? According to this recent article from the AARP Public Policy Institute (PPI), 27% of the generic…
How Can I Help?
Thanks for your interest in making a difference. On behalf of anyone living with a rare disease, we thank you. Ben's Friends is a 501(c)(3) non-profit, and your donations is…
Member’s Talk
"I'm excited to be representing such a great organization like Ben's Friends. Ben's Friends has helped so many, and we'd love to know how we've helped you, too. We've seen…