Addison’s Disease is a rare autoimmune condition which attacks the adrenal glands and causes insufficient production of aldosterone and the stress hormone cortisol. This then results in problems regulating salt…
Author: Rose Andrade
Foot and Float to Build 10 New Communities
Ten Ben’s Friends Members and Friends are traveling to Glacier National Park This August for five active days to prove rare Disease Can’t stop - us not on Land or…
2018 Ben’s Friends Community Network Update
The following new communities were started in 2018, many of which represent co-conditions that occur with Rare Diseases already supported by Ben's Friends Patient communities and may be of interest…
Ben Munoz Joins Antidote Rare Disease Conversation
Antidote, a digital health company who aims to accelerate the development of breakthroughs treatments, making medical research accessible to all, held a roundtable discussion named, "How are Rare Diseases Treated?:…
Ben’s Friends Newsletter November 2016
MESSAGE FROM BEN Hi, everyone, I hope this message finds you and your loved ones well. Ben’s Friends Patient Communities was founded in 2007; I had just…
BioBlast Matches Up To $5,000 In Donations To Help Build A New Home For Ben’s Friends
BioBlast Pharma will match each dollar up to $5,000 donated to Ben’s Friends for the migration of the Oculopharyngeal Muscular Dystrophy (OPMD) and Spinocerebellar Ataxia Type 3 (SCA3) patient communities…
CMX Hub Features Ben’s Friends
Ben’s Friends co-founder Ben Munoz shared in CMX Hub how to build trust from patients with rare diseases. According to Munoz, making members feel welcomed is key. The welcome is…
95% of Rare Diseases have No Drug or Therapy
Rare disease “affect more people than the biggest headline-grabbing diseases on the planet.” View this infographic produced by CrowdMed to see the stats: The Epidemic No One Is Talking About:…
Is the Price of Generic Drugs in the US Going Up?
A 1000% price hike in the cost of generic drugs? Can that be true? According to this recent article from the AARP Public Policy Institute (PPI), 27% of the generic…
How Can I Help?
Thanks for your interest in making a difference. On behalf of anyone living with a rare disease, we thank you. Ben's Friends is a 501(c)(3) non-profit, and your donations is…