March 10,2019 – Ben’s Friends, our network of patient communities and Rare Disease Review, a medical and health policy journal hosted a miniconference at Hart House, Toronto. The Conference featured a variety of esteemed speakers, all joined together and shared on their expertise and experience in their individual fields. Ben Munoz, co-founder of Ben’s Friends joined the conference and talked about the challenges of having a rare condition and the importance of peer to peer support when dealing with a rare condition.