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BensFriends.org

BensFriends.org

Patient Communities for People with Rare Diseases

  • Our Story
    • Mission
    • History
    • Team
    • Partners
    • Contact
    • Press Kit
  • Our Communities
    • Community List
    • Why Join?
    • Contribute
    • What Patients Say
  • Get Involved
    • DONATE
    • Dedicate A Gift
    • Internship
    • Volunteer
    • Shop CafePress
    • Contact Us
  • Resources
    • Patient Resources
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    • Get-Connected
  • Donate
    • Donate
    • Dedicate A Gift
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  • News
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Category: In The News

Ben Munoz Joins Antidote Rare Disease Conversation

July 24, 2017Rose Andrade

Antidote, a digital health company who aims to accelerate the development of breakthroughs treatments, making medical research accessible to all, held a roundtable discussion named, "How are Rare Diseases Treated?:…

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Mark Krueger and Associates,Inc Blog Featured Ben’s Friends

February 20, 2015Rose Andrade

Mark Krueger & Associates, Inc., one of the leading consultant to pharmaceutical, biotech, device and diagnostic companies features Ben’s Friends. John Stamler, Ben’s Friends Board Member, contributes on MK&A page…

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Global Genes Project Features Ben’s Friends

April 22, 2014Rose Andrade

The Global Genes Project, leading rare and genetic disease patient advocacy organization in the world, highlighted Ben's Friends bringing unique communities to rare disease patients. Read more from this article.

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Risk, UK Blog Features Ben’s Friends

March 30, 2014Rose Andrade

Dr. Richard A. Lawhern, Ph.D., community moderator, content author and Resident Research Analyst with “Living With TN”, an online community among Ben’s Friends, writes about the rapid growth of the…

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Forbes.com Features Ben Munoz and Ben’s Friends

March 1, 2014Rose Andrade

Ben Munoz and Ben's Friends Patient Communities were featured in Forbes over the weekend! Thanks to the Members who talked to the author, Sarah McKinney.

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Pharmaphorum Interviews LivingWithAtaxia Moderator Alan Tomas

February 10, 2014Rose Andrade

To mark the rare disease themed month and rare disease day 2014, Pharmaphorum's interviewed LWA moderator Alan Tomas. Here he shares his experience and discusses how powerful the internet can…

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Ning Features Ben’s Friends

September 18, 2013Rose Andrade

Ning, the world's largest SaaS platform for deploying vibrant social communities and the software platform used by Ben's Friends to set-up communities,  highlighted Ben’s Friends on its Community Spotlight blog…

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World Orphan Drug Congress USA Names Ben’s Friends as One of the Top 50 Social Media Influencers in Orphan Drug and Rare Disease

July 30, 2013Rose Andrade

Ben’s Friends appears in the list of Top 50 Social Media Influencers in Orphan Drug and Rare Diseases as reported by Caroline Hornby, Marketing Director for the World Orphan Drug Congress. Those…

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Kellogg’s Alumni Magazine Features Ben’s Friends

July 16, 2013Rose Andrade

Ben Munoz and Scott Orn, both Kellogg Alums Class of 2007, are incredibly honored and grateful that Kellogg's Alumni Magazine featured Ben's Friends in the Summer 2013 edition. The Kellogg…

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TechCrunch (The World’s Leading Tech Blog) Features Ben’s Friends re: Making a Big Impact on a Small Budget & Launching our Mobile App

June 8, 2013Rose Andrade

Finally, a mobile app that gives patients access to support groups wherever, whenever it's needed! Members and other people with rare diseases can now get support and information--and, soon, over…

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Our Patient Support Communities

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Acute Disseminated Encephalomyelitis (ADEM)
Addison's Disease
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Atrial Septal Defect
Brain Aneurysms
Caregiver Support Community (FB)
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Eagle Syndrome
Ehlers-Danlos Syndrome
Erythromelalgia
Fibromyalgia
Glossopharyngeal Neuralgia (GPN)
Guillain-Barre Syndrome (GBS)
Lupus
Lyme Disease
Mast Cell Disorder
Multiple Myeloma
Myositis
Narcolepsy
Oculopharyngeal Muscular Dystrophy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Sjogren's Syndrome
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Traumatic Brain Injury (TBI)
Von Willebrand's Disease (VWD)

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